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After A Life-Saving Transplant, The Groh Family Is On A Mission To “X out ALD”
Research
On June 30, 2024, Dr. Troy Lund provided an update on several active ALD research projects at University of Minnesota Leukodystrophy Center.
On May 23, 2024, Dr. John Wagner told the story of how embryo selection for an HLA-matched donor came to be an option. He was joined by Dr. Troy Lund, Cassie Groh, and Jamie McAnelly.
On July 16, 2023, Dr. Troy Lund provided an update on several active ALD research projects at University of Minnesota Leukodystrophy Center.
X out ALD hosted a special webinar, "The Loes Score" on May 30, 2023.
On July 24, 2022, Dr. Troy Lund provided an update on several active ALD research projects at University of Minnesota Leukodystrophy Center.
On July 25, 2021, Dr. Troy Lund provided an update on several active ALD research projects at University of Minnesota Leukodystrophy Center.
On August 19, 2020, Dr. Troy Lund provided an update on several active ALD research projects at University of Minnesota Leukodystrophy Center.
Community
In the News
Fire dept. gives boy battling rare genetic disease a proper send off following bone marrow transplant
Fire dept. gives boy battling rare genetic disease a proper send off following bone marrow transplant
Fire dept. gives boy battling rare genetic disease a proper send off following bone marrow transplant
Canadian boy gets life-saving treatment at Minneapolis hospital
Fire dept. gives boy battling rare genetic disease a proper send off following bone marrow transplant
Fire dept. gives boy battling rare genetic disease a proper send off following bone marrow transplant
ALD Can't Stop Brock!
Fire dept. gives boy battling rare genetic disease a proper send off following bone marrow transplant
ALD Can't Stop Brock!
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